Those who do will develop FTD, and they pass along that same 50 percent risk to each of their children. It’s a devastating feeling — that I may have passed something to them that could hurt them.”Even now, many in the family struggle with how to explain the impossible situation they’ve found themselves in. Once the researchers found the mutation, they encouraged each family member to test at an independent lab to learn who carried it. Everyone in the family could discover which side of the coin flip they landed. Turn the other, and you still have to say goodbye, slowly, to some of the people you love the most.

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Persons: Christy, Mary, Barb didn’t, Susan, Kathy, “, ” Barb, ”, they’ve, it’s, Teddy, Barb Organizations: Mayo Clinic