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Search resuls for: "Sara J. Winston"


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Opinion | The Lifelong Burden of a Chronic Illness
  + stars: | 2023-07-16 | by ( ) www.nytimes.com   time to read: +1 min
To the Editor:Re “‘My Body Is a Clock’: Portraits of Chronic Care,” by Sara J. Winston (Opinion guest essay, July 2):I want to thank Ms. Winston for her essay about the challenge of living with a chronic health condition in America. She clearly captured the persistent fear that lives in me and every American with a chronic condition who depends on continuous treatment. It was diagnosed in early childhood, and I require daily inhalers, oral immune-suppressant medications and vigilance to keep my condition in check. My life choices were all based on the essential requirement of maintaining affordable, continuous health care: my career, my employers, proximity to hospitals and a pulmonologist. Our American health care system, which relies heavily on employer-provided health insurance and is unaffordable for those with no health insurance, is a nightmare for people like Ms. Winston and me.
Persons: Sara J, Winston Locations: America, American
Chronic illness is well hidden from society. Before I had a name for what ailed my body, I thought of myself as dehydrated and out of shape. At that time, I looked at chronic illness as an outsider. In the fall of 2015, under the care of a neurologist, I began a monthly intravenous treatment of medication that blocks immune cells from entering the brain and spinal cord. I travel 65 miles to a site in the Hudson Valley for the infusion therapy.
Organizations: NewYork, Presbyterian Hospital Locations: Hudson
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