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Opinion | Talking (or Not) About Your Cancer
  + stars: | 2024-04-01 | by ( ) www.nytimes.com   time to read: +1 min
However, she has the unique opportunity to alert and educate many people regarding symptoms and treatments. And by speaking calmly and frankly, she has the additional opportunity to help remove the fear and stigma of a cancer diagnosis. Barbara MutterperlNew YorkTo the Editor:My mother was diagnosed with breast cancer when I was 12 years old and she was 33. In the 1960s breast cancer was often fatal, and cancer was not discussed publicly. I am 75 and had early stage breast cancer four years ago.
Persons: Daniela J, Lamas, Catherine , Princess of, Barbara Mutterperl Locations: Catherine , Princess of Wales, Barbara Mutterperl New York
I found myself thinking about this on Friday, when Catherine, Princess of Wales, made her cancer diagnosis public in a video. She did not share the type of cancer she had, nor the nature of the abdominal surgery she underwent in January after which the cancer was diagnosed. She spoke broadly of cancer, of the chemotherapy she was now being treated with and of her family. There are many medical questions here, some of which we can answer and many of which we cannot. Maybe that is one reason I found myself wanting to learn more, even if the medical questions can’t be answered right now.
Persons: Catherine , Princess of, Catherine, can’t Locations: Catherine , Princess of Wales
Walking through the intensive care unit is often a lesson in how much there is to fear. But now I am no longer afraid that the virus will leave me seriously ill, and the pandemic is a receding memory. Nearly four years after the World Health Organization’s declaration of a pandemic, the coronavirus is still with us. There is also the persistent threat of long Covid, the debilitating symptoms that can persist after an initial infection. On March 1, the Centers for Disease Control and Prevention began recommending that Americans with Covid no longer need to remain isolated for five days after falling sick.
Persons: Covid Organizations: Health, Centers for Disease Control, Prevention
But if he were born today with access to gene therapy for spinal muscular atrophy, he might have been able to walk without assistance. He might have been able to live a life without fear of impending medical catastrophe. The way Mr. Parish sees it, the life he has lived will one day become something of a historical curiosity. His experience of S.M.A., with all the suffering it has entailed, will likely be rendered extinct. Gene therapy has seen remarkable and highly publicized success in recent months, from the Food and Drug Administration’s approval of what amounts to cures for sickle cell disease to the news that a boy with congenital deafness could hear for the first time in his life following gene therapy.
Persons: Tyler Parish, Parish Organizations: Food Locations: Boston
Opinion | How New Motherhood Changed Me as a Doctor
  + stars: | 2023-11-26 | by ( Daniela J. Lamas | ) www.nytimes.com   time to read: +2 min
The family looked toward me, curious, clearly eager for a story that had nothing to do with illness. Babies don’t need to eat sweet potato fries. They should just eat the entire potato. When I arrived home, my daughter was already in the bath, splashing about and babbling with her bath toys. I washed my hands, scrubbing away the layers of the day, and then I scooped her up from her bath, warm and beautiful and gentle in her baby bath towel.
Persons: Fries
And though comprehensive sickle cell care — at dedicated centers with expert hematologists, social workers and pain management specialists — reduces hospitalizations, and is the standard for diseases like cystic fibrosis and hemophilia, which do not disproportionately affect Black people, these centers are few and far between for sickle cell. Into this complicated landscape enters the possibility of gene therapy. It’s important to note that this isn’t the first cure for sickle cell. is expected to review another gene therapy from the company Bluebird Bio that targets sickle cell disease but does not use CRISPR; this was the therapy Mr. Holmes received as part of the N.I.H. When she was 17 and hospitalized, facing the reality of her chronic illness, she told her mother that she was ready to pursue gene therapy.
Persons: Holmes, Elizabeth Ford, Ford Organizations: Vertex Pharmaceuticals, CRISPR Therapeutics, Bluebird
Opinion | A Fitting Final Gift From Jimmy Carter
  + stars: | 2023-08-28 | by ( Daniela J. Lamas | ) www.nytimes.com   time to read: +2 min
But Mr. Carter and his family were able to see it differently. After a series of short hospital stays, this winter Mr. Carter made what for so many is an impossible decision. It would have been easy for him to obfuscate the truth of his medical condition, but Mr. Carter had no interest in doing so. When it came to the transition to hospice care, Mr. Carter was no different. “This is intentional,” Mr. Alter noted.
Persons: Carter, ” Jonathan Alter, ” Mr, Alter’s, , Carter’s, Mr, Alter, Organizations: White Locations: U.S
The bar is higher for diagnostic programs than it is for programs that write our notes. But the way we typically test advances in medicine — a rigorously designed randomized clinical trial that takes years — won’t work here. But even as he prepares to embrace new technology, Dr. Rodman wonders if something will be lost. writing our notes for us, Dr. Rodman sees a trade-off. At the same time, patients will be using these technologies, asking questions and coming to us with potential answers.
Persons: , Adam Rodman, Beth, Rodman, , Dr Organizations: Beth Israel Deaconess Hospital, New England, of Medicine, A.I Locations: Boston
Opinion | Not Every Pandemic Needs Someone to Blame
  + stars: | 2023-05-21 | by ( Daniela J. Lamas | ) www.nytimes.com   time to read: +2 min
Of course, health care workers frequently care for patients who are suffering, either directly or indirectly, as a result of actions they have taken. When we see patients with lung cancer, for instance, we mention whether they had a history of cigarette smoking. That’s not to say that the medicine we offer is different, not in any way that’s measurable. Which is one reason the coronavirus was so frightening to those of us in health care. There were health care workers who railed against the idea of offering advanced and scarce resources like a lung bypass or transplantation to unvaccinated patients with life-threatening disease.
I have taken supplements and prescribed myself an anti-nausea medication that has the side effect of increasing the hormone responsible for milk production. And I know, rationally, that this had nothing to do with love, that supplementing with formula is more than OK. For all the pressure I have felt as a doctor or a writer, there is nothing that compares with the expectations placed on mothers. We are supposed to fall in love with our babies immediately, to experience motherhood as a transcendent state. Not exactly as I expected, nothing ever is — not family, not motherhood — but something beautiful.
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